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Alberta Continuing Care Act legislative review input To support the healthcare system, vulnerable Albertans, and caregivers, Caregivers Alberta – in conjunction with the Alberta Caregivers Focused Coalition (a strategic alliance of 63 organizations in Alberta committed to improving support for caregivers) – we were invited to, and provided input on, modernizing the Continuing Care Act in Alberta. Our submission aimed to improve caregiver wellbeing by enshrining five principles, to the extent possible, within the new Act. The following principles speak to the core of our proposal:
1) That caregivers should be referenced in legislation in a way that allows them to access continuing care services;
2) That continuing care services enable caregivers to achieve outcomes that support them in their daily caregiving activities;
3) That reflects a holistic definition of caregiver wellbeing that encompasses physical, psychological, social and material outcomes;
4) That caregivers be considered the best judges of what constitutes well-being for them;
5) That decisions about the provision of supports consider and respect caregivers’ other linked life
circumstances (e.g., other caregiving responsibilities, family responsibilities, living circumstances, etc.)
The Facility-Based Continuing Care Review Recommendations Report was released on May 31, 2021 and will be going to Cabinet for consideration in the fall of 2021 along with a detailed action plan on how to implement the recommendations. Despite the evidence presented, and our expressed concerns about the impact of client-directed care (also known as self-managed care) on family caregivers, the provincial government decided to implement client-directed care across the province. That being said, they are well aware of the need to reduce the administrative burden on caregivers, and as a result, they have enlisted Alberta Blue Cross to complete the administrative pieces of the program. Alberta Blue Cross is reportedly very good at this work and creating streamlined programs. Clients/families will steer how they want services delivered, and the agency can direct bill up to the assessed hours. They are starting with a demonstration project in Edmonton, including conducting focus groups with clients/families to hear their feedback.
More work will be needed as recommendations are considered and implemented.2.4 ATforCC, AWCRP-2020-16 University of Alberta, Caregivers Alberta KTEE - Knowledge Mobilization 2021-02-17 2.4 ATforCC, AWCRP-2020-16 NEW Caregivers in Alberta: Economic costs and contributions A two-page infographic that describes the costs and contributions of caregivers in Alberta, based on new analysis of Statistics Canada's 2018 General Social Survey, was co-created with Caregivers Alberta. The infographic was widely distributed, including being posted to CORE Alberta, the Government of Alberta's Collaborative Online Resources and Education portal. CORE is the knowledge hub for Community-Based Seniors Serving organizations and allied agencies and individuals in Alberta. The infographic was also included in the Alberta Seniors and Housing Minister's newsletter. Caregivers Alberta featured the new infographic in their December 2021 Caregiver Connections newsletter, and they are already using the new statistics in their advocacy work on their social media channels.AWCRP-2020-16 University of Alberta, Caregivers Alberta KTEE - Knowledge Mobilization 2021-11-03 AWCRP-2020-16 NEW Caregivers in Alberta: impact on wellbeing A two-page infographic that describes the impact of caregiving on the wellbeing of caregivers in Alberta, based on new analysis of Statistics Canada's 2018 General Social Survey, was co-created with Caregivers Alberta. The infographic was widely distributed, including being posted to CORE Alberta, the Government of Alberta's Collaborative Online Resources and Education portal. CORE is the knowledge hub for Community-Based Seniors Serving organizations and allied agencies and individuals in Alberta. The infographic was also included in the Alberta Seniors and Housing Minister's newsletter. Caregivers Alberta featured the new infographic in their December 2021 Caregiver Connections newsletter, and they are already using the new statistics in their advocacy work on their social media channels.AWCRP-2020-16 University of Alberta, Caregivers Alberta KTEE - Knowledge Mobilization 2021-11-03 AWCRP-2020-16 "Something's gotta give": Juggling care work and paid work in mid-life Kym Schreiner from Alberta Seniors and Housing invited us to host a roundtable discussion for Healthy Aging CORE (Collaborative Online Resources & Education) network. CORE Caregivers connects community-based senior serving professionals, volunteers, and allied partners from all across Alberta who encounter caregivers in their work with resources and support in addition to education and collaboration opportunities. The focus of the roundtable discussion was planned with Kym and other community partners from Caregivers Alberta, Carya Calgary and Dementia Network Calgary.
ABSTRACT: Research shows that mid-life caregivers (age 50+) who provide care to family or friends face challenges remaining in or returning to the labour force. What is the research revealing, what kinds of challenges arise for those juggling care work and paid work, and what kinds of resources need to be available to support them? The roundtable discussion featured: Wendy Moyle (employed caregiver and Board member of Caregivers Alberta); Kenya Kondo (Co-founder of MatchWork, industry partner), Janet Fast (AW researcher), Jacquie Eales (KM specialist) and moderated by Angus Mcdonell (Caregivers Alberta, Stakeholder Relations).
Participants commented that the discussion was thought-provoking and enlightening! Government partners hope to forward a number of our ideas within their policy world.
A recording of the roundtable discussion is available here: https://corealberta.ca/resources/recording-somethings-gotta-give-juggling-care-work-and-paid-work-mid-life-event
MyMatchWork.com promoted the recording across their network on April 7, 2022.AWCRP-2020-16 Government of Alberta, University of Alberta, Other, Caregivers Alberta KTEE - Knowledge Mobilization 2022-02-22 AWCRP-2020-16 Insights on Retaining Employed Family Caregivers in Your Talent Pool An insight blog post was written and produced in partnership with colleagues at MatchWork, Caregivers Alberta, and Vanier Institute of the Family based on interesting insights from a small crowdsourced survey of employed caregivers.AWCRP-2020-16 University of Alberta, Caregivers Alberta, Other, Vanier Institute of the Family KTEE - Knowledge Mobilization 2023-01-23 AWCRP-2020-16 How does caregiving impact paid work for employed women and men? This three-page infographic (the second in a series of six) describes the gender differences in the impact of caregiving on paid work. The infographic was co-created with partners based on an analysis of the 2018 General Social Survey on Caregiving and Care Receiving and produced and translated into French in partnership with staff at the Vanier Institute of the Family. A Tweet sheet highlighted key messages for social media promotion by our partners.
How does caregiving impact paid work for employed women and men? EN: https://bit.ly/3GR3IYv FR: https://bit.ly/3ZubMWf and featured on the Vanier Institute of the Family home page https://vanierinstitute.ca/AWCRP-2020-16 University of Alberta, Caregivers Alberta, Vanier Institute of the Family KTEE - Knowledge Mobilization 2023-01-10 AWCRP-2020-16 Help caregivers THRIVE April 4 and every day Article appeared in Respect News written by Caregivers Alberta, and featuring research evidence co-created with the University of Alberta about the aggregate hours of care provided by caregivers in Alberta and the economic value of that time as well as the impact of caregiving on caregivers' health, jobs, and financial wellbeing.AWCRP-2020-16 Caregivers Alberta, University of Alberta KTEE - Knowledge Mobilization 2023-04-26 AWCRP-2020-16 Embracing Carers in Alberta Sponsored by EMD Serono, a virtual panel discussion has been organized as part of their launch of Caregiver Concierge platform. Panel members include: Janet Fast (researcher, University of Alberta), Johnna Lowther (Director of Programs, Caregivers Alberta) and John-Peter Bradford, caregiver, cancer survivor, co-CEO and co-founder of the Life-Saving Therapies Network. The focus of the panel discussion is on the latest research and trends in caregiver wellbeing in Alberta, and available resources that can support the more than one million unpaid caregivers in this province. Jacquie Eales provided background context to the consultants and fact-checked and revised their discussion guide based on available evidence.AWCRP-2020-16 University of Alberta, Caregivers Alberta KTEE - Knowledge Mobilization 2023-06-14 AWCRP-2020-16 What is a caregiver? Caregivers Alberta invited Jacquie Eales to bring her research perspective to two videos they were creating about caregivers: What is a Caregiver? The Caregiver Burden. Caregivers Alberta uses these videos in their education and outreach programs for caregivers. They are also posted on their YouTube channel.AWCRP-2020-16 Caregivers Alberta, University of Alberta Product 2023-07-12 AWCRP-2020-16 The Caregiver Burden Caregivers Alberta invited Jacquie Eales to bring her research perspective to two videos they were creating about caregivers: What is a Caregiver? The Caregiver Burden. Caregivers Alberta uses these videos in their education and outreach programs for caregivers. They are also posted on their YouTube channel.AWCRP-2020-16 Caregivers Alberta, University of Alberta Product 2023-07-12 AWCRP-2020-16 Caregivers Kitchen Table Discussion with ADM Dana Mackie A small group of stakeholders, including Jacquie Eales, Jasneet Parmar, and the Executive Director and Program Lead from Caregivers Alberta, had an informal, in-person discussion about caregiving with Assistant Deputy Minister Dana Mackie and the Ministry of Seniors, Community and Social Services (SCSS) team. The discussion focused on solutions to sustain family caregivers' contributions in Alberta, leveraging the mandate of SCSS where possible. Overall, to develop effective policies, it is essential to:
• Recognize changing work and family patterns, age structures, and other socio-demographic characteristics of caregivers and their collective needs and resources, particularly at the interface of work and care, and barriers to older workers' labour force participation
• Integrate family/friend care as part of the formal care system – caregiving is a shared responsibility
• Support the material, relational, and subjective well-being of family caregivers to reduce the cumulative impact of caregiving across the life course and address inequities arising because of living arrangements, generational cohort, immigration status, and gender.
Participants were:
• ADM Dana Mackie, Seniors Division, Ministry of Seniors, Community and Social Services (SCSS)
• Jas Chana, A/Executive Director, Seniors Strategic Planning Branch
• Angella Gautier, SCSS
• Kym Schreiner, SCSS
• Darrel Gregory, Executive Director, Caregivers Alberta
• Johnna Lowther, Manager, Programs and Services, Caregivers Alberta
• Jasneet Parmar, Alberta Health Services Home Living
• Sharon Anderson, Faculty of Medicine and Dentistry, University of Alberta
• Bev Suntjens, Vice Dean, Faculty of Health Studies, NorQuest College
Ayshea Thornton, Manager, Health Projects, NorQuest College
• Jacquie Eales, RAPP Research Manager, University of Alberta
AWCRP-2020-16 University of Alberta, Alberta Health Services, Caregivers Alberta, Government of Alberta Networking and Partnerships 2023-08-28 AWCRP-2020-16 Integrating paid work and unpaid care work Sponsored by the Vanier Institute of the Family, we submitted an invited abstract for a panel discussion to the Work Family Researchers Network conference in Montreal in June 2024.
Abstract
All of us will experience caring for family members, friends and neighbours, as givers or receivers of care, at some time in our lives. Positive and negative implications of taking on care responsibilities are well-documented with a focus in the academic literature, as well as policy and practice, on negative social, health, employment and financial consequences. Child care has been the subject of extensive research, and of substantial innovation in Human Resource (HR) practice and public policy, over many decades. While caring for dependent adults (caregiving) has attracted much less
attention, a growing body of evidence shows it to be no less impactful for families, society and the economy. Yet, it often is assumed to be “free”, a “labour of love” and a private family matter, much as child care was 50 years ago. In this session we share evidence about the recent history of family caregiving in Canada, focusing on employed caregivers, and emerging policy and practice to support employed caregivers. Fast reports on changes in the experiences of family caregivers in Canada, focusing on their need and ability to integrate paid work with unpaid care work, over the last decade. Magnaye shares findings from his conversations about the unique experiences of transnational employed caregivers. Gregory describes efforts of caregiver-serving NGOs to build caregiver-friendly policies and practices. Kovacic (to be confirmed) addresses how HR professionals can nurture a culture that values professional and caregiving responsibilities in the workplace. Tremblay will comment on data and program gaps in support of employed caregiver well-being.AWCRP-2020-16 University of Alberta, Caregivers Alberta Scientific Excellence - Advancing Knowledge 2023-11-15 AWCRP-2020-16
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