AGE-WELL Funded ProjectsOutputs
| Title |
Category |
Date |
Authors |
| Applications of social constructivist learning theories in knowledge translation for healthcare professionals: A scoping review | Scientific Excellence - Advancing Knowledge | 2014-01-01 | Anne Thomas | | A snapshot of Canadians caring for persons with dementia: The toll it takesFACTS are research summaries that are intended for a broad-based audience comprised primarily of policy makers, practitioners, and advocates. The content of each brief is topical, often integrating research findings across projects. FACTS are available on the RAPP web site.
This particular research brief provides a snapshot of the lives of Canadians caring for a family member with dementia and the health, social and financial impacts they experience based on analysis of the 2012 Statistics Canada General Social Survey.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2015-10-16 | | | Designing Technology that Cares: Caregivers' Experiences Drive the Design Process (Infographic)This infographic was developed following the DATcares trans-disciplinary workshop that was held in Waterloo Ontario in June 2017 as a joint WP2 and WP3 initiative.
2.4 ATforCC, DATcares University of Alberta, University of Waterloo | KTEE - Knowledge Mobilization | 2018-04-03 | | | Designing Technology that Cares: Caregivers' Experiences Drive the Design Process (Research Brief)This research brief was developed following the DATcares trans-disciplinary workshop that was held in Waterloo Ontario in June 2017 as a joint WP2 and WP3 initiative.
URL: 2.4 ATforCC, DATcares University of Alberta, University of Waterloo | KTEE - Knowledge Mobilization | 2018-04-03 | | | Recognizing carers in Canada and understanding their barriers to technology adoptionWorking on behalf of WP2, Jacquie Eales and Janet Fast, with input from Louise Demers and Michelle Plante, wrote a blog post for the APPTA web site. The blog was prepared for and posted on April 2, 2019 to recognize National Carers Day in Canada and highlight the collective work of WP2 (and DATCares) in understanding and addressing carers' barriers to technology adoption.2.1 INToCARE, 2.2 MovIT-PLUS, 2.3 CARE-RATE, 2.4 ATforCC, DATcares, AWCRP-2020-17 University of Alberta, Université de Montréal, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | KTEE - Knowledge Mobilization | 2019-04-02 | | | Working Overtime: Career vs CareVideo produced in collaboration with Kim Chapman, a caregiver from Calgary AB whose 58 year old husband has Fronto-Temporal Degeneration, and members of WP2.4 and 2.9. This is the first of three videos co-created with Kim about how caregiving impacts her ability to participate in the paid labour force.2.4 ATforCC, 2.9-CAT University of Alberta, University of Leicester, Johns Hopkins Medicine, University of Calgary | Product | 2019-09-03 | | | Caregiving's ripple effect on relationshipsVideo produced in collaboration with Kim Chapman, a caregiver from Calgary AB whose 58 year old husband has Fronto-Temporal Degeneration, and members of WP2.4 and 2.9. Mark Stolow also reviewed and commented on this video. This is the second of three videos co-created with Kim about how caregiving impacts her relationships with other people.2.4 ATforCC, 2.9-CAT University of Alberta, University of Leicester, Johns Hopkins Medicine, University of Calgary, HUDDOL | Product | 2019-09-03 | | | WP2 page on RAPP web siteOur AGE-WELL projects are listed on our Research on Aging, Policies and Practice web site at https://rapp.ualberta.ca/research/ and our KM products created are listed on https://rapp.ualberta.ca/snapshot-of-aging/ 2.4 ATforCC University of Alberta | Product | 2019-09-03 | | | How can we sustain family caregivers' capacity to care? What caregivers need and how technology can help provide itA blog post was published to accompany a BMC Geriatrics article. The two were published in tandem on February 27, 2020. Our partners across Canada helped promote the blog post by sharing on their social media. Partners involved included Caregivers Alberta, Caregivers Nova Scotia, HUDDOL, Government of Alberta Caregivers Working Group,2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2020-02-27 | | | Caregivers in Nova Scotia: economic costs and contributionsCo-created with Angus Campbell of Caregivers Nova Scotia, and based on provincial-level analysis of the 2012 General Social Survey, the infographic is used in Caregiver NS's advocacy work. Angus wrote: "My team is so impressed. I presented them to my Board on Saturday. I am forwarding them to the NS Dept of Health and Wellness (our funder) as well as the Continuing Care branch of the NS Health Authority. I also have some meetings with Emergency Health Services, Geriatrics, and Acute Care coming up." Caregivers NS uploaded these to their website (they get over 9,000 hits per month), emailed them out to their entire distribution list of 1500 people, and posted on their social media accounts resulting in 2000 views so far.
The infographic is posted on their website here https://caregiversns.org/news/
2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2020-01-16 | | | Doris, an enduring care trajectoryCo-creation of a video with Caregivers Alberta about Doris, a caregiver whose pattern of caregiving across her life course reflects that of an enduring care trajectory. 2.4 ATforCC University of Alberta | Product | 2020-03-12 | | | Wrennie, a late bloomer care trajectoryCo-creation of a video with Caregivers Alberta about Wrennie, whose pattern of caregiving across her life course reflects that of a late bloomer care trajectory.2.4 ATforCC University of Alberta | Product | 2020-03-12 | | | Wendy, an all at once care trajectoryCo-creation of a video with Caregivers Alberta about Wendy, whose pattern of caregiving across her life course reflects that of an all at once care trajectory.2.4 ATforCC University of Alberta | Product | 2020-03-12 | | | Lisa, a serial caregiverCo-creation of a video with Caregivers Alberta about Lisa, whose pattern of caregiving across her life course reflects that of a serial care trajectory.2.4 ATforCC University of Alberta | Product | 2020-03-12 | | | Sally, an encore care trajectoryCo-creation of a video with Caregivers Alberta about Sally, whose pattern of caregiving across her life course reflects that of an encore care trajectory.2.4 ATforCC University of Alberta | Product | 2020-03-12 | | | National Carers Day 2020WP2.4 were part of the 2020 National Carers Day campaign and Caregiver Resource Expo organized by Carers Canada. We contributed one pre-recorded presentation by Janet Fast on Caring across the life course, eight videos and one infographic that reinforced the themes of connecting, empowering and supporting caregivers. On April 7, 2020 alone (the day of National Carers Day) there were 2,126 visits to the NCD page (85% of whom were new visitors) from the following countries: Canada, USA, UK, France, Belgium and Australia. The videos will be available as on-demand that are accessible throughout 2020. Link was included to AGE-WELL NCE. https://www.carerscanada.ca/nationalcarergiverday/
We also partnered with Huddol and Teva Canada to create an infographic about improving caregivers everyday lives through technology and 24 social media assets. Teva Canada paid for a graphic designer. The infographic was posted on Huddol who were also instrumental in recruiting caregivers. The infographic was also emailed to individuals who helped with recruitment including Ron Beleno, Sharon Anderson and Arlene Astell. The infographic was posted to the RAPP website.
Individual emails were sent to 400 (of 600) caregivers who participated in our online survey thanking them for their caregiving, sharing the infographic and findings, and letting them know about resources available if they're feeling lonely or isolated. One caregiver replied saying: " Your email made me cry and made my day. Bless you."
The infographic (and social media assets for advocacy organizations) were also emailed to organizations who helped with recruitment including Caregivers Alberta Early Onset Dementia Alberta, Vanier Institute of the Family, AGE-WELL, Alberta Seniors and Housing, Young Caregivers Association, CARP.
2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2020-04-07 | | | Petro Canada Roundtable on the Future of Caregiving in CanadaPetro Canada has identified caregiving as a national priority and has made a long term commitment to support this important social issue. They recently established a new charitable organization to ensure caregivers are given the support they need.
Organized by impakt, on behalf of Petro Canada, Jacquie Eales was invited to participate in a virtual roundtable where leaders in the caregiving space discussed how to best support carers and nurture a community of caring. As a caregiver advocate and research manager, my name was put forward by Mark Stolow of Huddol.
As part of the preparations for the roundtable, impakt conducted a survey of the main factors that need to be considered when having a national conversation about supporting caregivers. Key findings from this survey fed into the roundtable conversations and the position paper that was written, informed by input of participants, will help the new charity begin to improve awareness of the conditions and support needed for caregivers across Canada.
On November 20, 2020 Petro-Canada launched its new foundation (Petro-Canada CareMakers Foundation), a philanthropic organization to help organizations who support family caregivers across the country, and the report from the roundtables, available here: https://futureofgood.co/petro-canada-caremakers-foundation/ Suncore Energy is promising to invest $10 million over 5 years into supporting caregiver organizations across the country. The aim to bring awareness and support to the essential work of caregivers.
2.4 ATforCC, AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2020-09-29 | | | Provide evidence to Age Friendly Edmonton ageism infographicsLeading up to the UN International Day of Older Persons on October 1, 2020, Age Friendly Edmonton requested some statistics on the contributions older adults make to society in terms of caregiving, volunteerism and charitable giving. I provided relevant information, including findings based on our analysis of the 2012 General Social Survey on caregivers aged 65+. The infographic is available at https://www.growolderwithme.net/ 2.4 ATforCC, AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2020-10-01 | | | How does technology help caregivers?Co-created with Catherine Suridjan, Director of Policy and Knowledge Translation with Carers Canada, and in recognition of caring Canadians, the two-page infographic highlights caregivers' experiences with technology. It was released on April 6, 2021 as part of National Carers Day, promoted on social media, and posted on the Carers Canada and Vanier Institute of the Family websites.
https://www.carerscanada.ca/wp-content/uploads/2021/04/Caregivers-Experiences-with-COVID-and-Technology-EN-FR.pdf 2.4 ATforCC, AWCRP-2020-16 University of Alberta, Canadian Home Care Association, Other | KTEE - Knowledge Mobilization | 2021-04-06 | | | Enhancing the Employability of Older WorkersAs part of AgeTech Innovation Week, we organized a catalytic conversation on enhancing the employability of older workers featuring four panel members: Roger Marple (AW Older Adults and Caregivers Advisory Committee), Kenya Kondo (co-founder of MyMatchWork.com), Laura Tamblyn Watts (CEO, CanAge) and Janet Fast (Professor, University of Alberta and AW researcher). Jacquie Eales co-developed the guiding script based on interviews with panel members, and she moderated the discussion. Panelists discussed how to help people who experience challenges to work: by redressing misconceptions, by co-developing technology solutions, and by advocating for better workplace and public policies.
The recording was posted to the AW YouTube Channel and subsequently offered by MyMatchWork.com as an Age-Tech Webinar, thereby maximizing impact.AWCRP-2020-16 University of Alberta, Other, CanAge | KTEE - Knowledge Mobilization | 2021-10-05 | | | NEW Caregivers in Alberta: Economic costs and contributionsA two-page infographic that describes the costs and contributions of caregivers in Alberta, based on new analysis of Statistics Canada's 2018 General Social Survey, was co-created with Caregivers Alberta. The infographic was widely distributed, including being posted to CORE Alberta, the Government of Alberta's Collaborative Online Resources and Education portal. CORE is the knowledge hub for Community-Based Seniors Serving organizations and allied agencies and individuals in Alberta. The infographic was also included in the Alberta Seniors and Housing Minister's newsletter. Caregivers Alberta featured the new infographic in their December 2021 Caregiver Connections newsletter, and they are already using the new statistics in their advocacy work on their social media channels.AWCRP-2020-16 University of Alberta, Caregivers Alberta | KTEE - Knowledge Mobilization | 2021-11-03 | | | NEW Caregivers in Alberta: impact on wellbeingA two-page infographic that describes the impact of caregiving on the wellbeing of caregivers in Alberta, based on new analysis of Statistics Canada's 2018 General Social Survey, was co-created with Caregivers Alberta. The infographic was widely distributed, including being posted to CORE Alberta, the Government of Alberta's Collaborative Online Resources and Education portal. CORE is the knowledge hub for Community-Based Seniors Serving organizations and allied agencies and individuals in Alberta. The infographic was also included in the Alberta Seniors and Housing Minister's newsletter. Caregivers Alberta featured the new infographic in their December 2021 Caregiver Connections newsletter, and they are already using the new statistics in their advocacy work on their social media channels.AWCRP-2020-16 University of Alberta, Caregivers Alberta | KTEE - Knowledge Mobilization | 2021-11-03 | | | Life course trajectories of family care: Implications for care policyWe wrote a one-page Research Policy Snapshot for the Canadian Research Data Centre Network (CRDCN) based on findings from analyzing the 2012 General Social Survey on Caregiving and Care Receiving and the policy implications of this research. The Research Policy Snapshot was a new initiative of the CRDCN to facilitate knowledge mobilization to policy analysts. We worked iteratively with CRDCN over several months on this new initiative as they developed a template. Our research policy snapshot and supplementary information was included in the inaugural digest, volume 1, number 1 in January 2022.
Karolina Jalowska retweeted the post on AGE-WELL's Twitter and LinkedIn accounts.
https://crdcn.ca/app/uploads/2022/01/Life-course-trajectories-of-family-care-Implications-for-care-policy-Jan-2022.pdf2.4 ATforCC, AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-01-31 | | | Guilt, love and dedication: Caregivers share stories from across Alberta through CBC's call-in showJacquie Eales participated in CBC radio's call-in show Alberta@Noon with host Judy Aldous to discuss the challenges people face in wanting to grow older in their own homes, relying on the support of adult children, spouses and friends to make it happen. Albertans shared their stories of trying to make aging in place a reality. Many shared stories of how care work is unsustainable, especially alongside paid work. On air, Jacquie promoted the support available through Caregivers Alberta, who subsequently assisted in promoting the interview across their social media channels to educate the public.AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-02-07 | | | Value of Family Caregiving in CanadaBased on analysis of the 2018 General Social Survey on Caregiving and Care Receiving (the most recent national survey available), we created a two-page infographic that highlights the proportion and number of caregivers in Canada, the aggregate amount of time they spend providing care (5.7 billion hours), the economic value of family care work ($97.1 billion or 2.8 million FTE workers), and the magnitude of caregivers' contributions to the Care Economy. Caregivers' aggregate time and value by province were also included.
Release of this infographic was coordinated with an article in The Conversation Canada, and shared in advance with our industry, community and government partners so they could use the findings and promote it across their respective networks and social media channels (including AGE-WELL, CanAge, Canadian Home Care Association, Caregivers Alberta, Family Carers Alberta, MatchWork, Vanier Institute of the Family, University of Manitoba and Sustainable Care in the UK).
Partners have commented on how valuable this resource is, and how often they reference it in their advocacy work. In the first month, the infographic had 293 hits from Canada, France, the USA and seven other countries. Organizations and individuals who retweeted the post during the first week included: Canadian Centre for Caregiving Excellence, National Institute on Ageing, and other influencers. The infographic continues to garner lots of attention, having 83 hits so far in April.
The infographic is available on the University of Alberta RAPP website (rapp.ualberta.ca/snapshot-of-aging) here: bit.ly/3133yLV
AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-02-21 | | | National Caregivers Day organizationNadine Henningsen (Carers Canada | Canadian Home Care Association) and Jacquie Eales, with support from AGE-WELL's NMO (Dorina and Karolina), planned activities for National Caregivers Day (April 5, 2022) that focused on balancing work and care. HQP Andrew Magnaye assisted with event coordination, and as chat moderator during one of two catalytic conversations held that day.
NCD activities included:
- Caregivers' experiences (stories about balancing work and care from employees perspectives)
- Employer champions (stories from employers about how they support employees with caregiving responsibilities, including our partner MatchWork)
- two catalytic conversations, including one focused on Balancing Work and Care: Strategies for Meaningful Employment, that Jacquie and Andrew organized.
- communication toolkit (key messages, employee infographic and employer infographic)
- federal recognition in the form of videos from Prime Minister Trudeau, three federal cabinet ministers, leaders of the Conservative Party of Canada and New Democratic Party of Canada, and the Shadow Minister for Seniors.AWCRP-2020-16 University of Alberta, Canadian Home Care Association, Other, KITE Research Institute at University Health Network | KTEE - Knowledge Mobilization | 2022-04-05 | | | Balancing work and care: strategies for meaningful employmentApril 5 is National Caregiver Day when we recognize the nearly 8 million Canadians who care for family and friends who have chronic health conditions, disabilities or functional limitations. Combining care work and paid work is the norm for many employed Canadians, with caregivers making up 30-35% of the paid workforce. Join a catalytic conversation with our panelists to discuss the challenges of balancing paid work and unpaid caregiving responsibilities, the marketable ‘soft’ skills that caregivers acquire as part of their care journey, and how employers can benefit from and better support caregivers in the workplace.
The webinar covered:
● Challenges of balancing paid work and unpaid care responsibilities What’s working and what’s not?
● Ways to support caregivers in the workplace: technology, policies, and practices.
Panelists:
● Wendy Moyle, employed caregiver and owner of Wendy’s Errands for Elders
● Janet Fast, Professor, Department of Human Ecology, University of Alberta and AGE-WELL researcher
● Kenya Kondo, Co-founder, MyMatchWork.com
● Frank Monteleone, Chief People Officer & President, Rexall Care Network
Moderator:
● Jacquie Eales, Research Manager, Research on Aging, Policies and Practice (RAPP), University of Alberta
Sponsors:
● AGE-WELL NCE
● Canadian Home Care Association / Carers Canada
● University of Alberta, Research on Aging, Policies and Practice
The webinar was recorded and will be posted on the AGE-WELL You Tube Channel and Carers Canada's website.
AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-04-13 | | | The Gifts of AgingJacquie Eales was invited as a guest speaker to present to a local Edmonton Public School Board high school class taking the Community Care Program. Jacquie and her 85-year old mother Joan integrated research with lived experience, speaking to the class about the gifts of aging and debunking some of the stereotypes about aging and older adults.AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-04-27 | | | Social consequences of family care to adults: A scoping reviewThe power of social connections is a contemporary focus of research across world regions. Yet evidence of challenges to carers' social relationships remains fragmented and underexplored. We conducted a scoping review of 66 articles to create a state of knowledge review of social consequences of caring. Findings indicate evidence of consequences to relationships with care receivers, with other family members and to broader social networks. Knowledge gaps include changes in relationships across time and in understanding diversity in types and extent of consequences. Evidence challenges assumptions related to caregiving families and to the sustainability of family care.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2017-06-01 | | | Technology's impact 'mixed' for unpaid caregiversArticle in Folio, a University of Alberta online publication, March 28, 2018. Technology can be helpful to people caring for loved ones, but it can also be complicated and costly—something UAlberta researchers want to remedy by consulting caregivers on what they need.2.4 ATforCC, 2.11-SIP A1 University of Alberta | KTEE - Knowledge Mobilization | 2018-03-28 | | | Final commentary for CJA supplemental issue: the hidden costs of care2 page viewpoint, no abstract2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2008-01-01 | | | Social consequences of family care of adults: a scoping reviewThe power of social connections is a contemporary focus of research across world regions. Yet, evidence of challenges to carers' social relationships remains fragmented and underexplored. We conducted a scoping review of 66 articles to create a state-of-knowledge review of the social consequences of caring. Findings indicate evidence of consequences for relationships with care receivers, with other family members and with broader social networks. Knowledge gaps include changes in relationships across time and in understanding diversity in the types and extent of consequences. Evidence challenges assumptions related to caregiving families and to the sustainability of family care.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2017-01-01 | | | From ‘Needs’ to ‘Goals’: Evolving the User Centered Design process for technology supporting family caregiversIn this paper we describe adjustments to a particular software design process aimed at developing technology to support family caregivers. Our case study focuses on the co-design of a smartphone application to assist caregivers in managing and coping with the work of caring for older adults. We use the specifics of this case study to shed light on the technology development benefits of framing user-centered design (UCD) through caregivers’ goals rather than their needs. We show how this re-framing of the co-design process away from a deficit, or needs-based approach and towards a strength, or goal-oriented approach is central to developing technologies that caregivers are more likely to commit time and resources to learning and integrating into their lives.2.1 INToCARE, 2.4 ATforCC, 2.9-CAT, 2.11-SIP A1 University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2018-07-31 | | | Life course trajectories of family careMore than 30 years ago, Elder (1985) theorized multiple life course trajectories in domains such as family and work, punctuated by transitions that create the structure and rhythm of individual lives. We argue that in the context of population ageing, family care should be added as a life course domain. We conceptualise life courses of family care with core elements of ‘care as doing’ and ‘care as being in relationship’, creating hypothetical family care trajectories to illustrate diversity of life course patterns of care. The framework provides a basis for considering influences of care on cumulative advantage/disadvantage for family carers.
As of February 25, 2020 the article has had nearly 2500 abstract views and 400 full text downloads. It was picked up by 5 news outlets and tweeted by 28.
The article was also named one of the top 5 articles published in 2019 in the International Journal of Care and Caring!2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2019-04-13 | | | Towards sustainable family care: Using goals to re-frame the user-centred design of technologies to support carersTechnology has been identified as an important strategy in making caring sustainable. This article takes the design process for carer support technology as a lens on the divergent definitions that are in play when governments, technology developers and carers contemplate ‘sustainability’. We argue that a central impediment to finding a productive point of overlap among the three perspectives is a predominant focus on carers’ needs. We contrast this needs-based approach, and its focus on doing the tasks of care, with a goal-oriented approach focused on being in relationships. Reframing the conversation around goals is important to achieving truly sustainable caring.2.1 INToCARE, 2.4 ATforCC, 2.9-CAT University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2019-08-19 | | | Using technology to support caregivers of older people with dementiaThis article was undertaken as part of a WP2 KTEE initiative in year 5 on behalf of its four core research projects. We submitted an article for The Conversation Canada, which was subsequently published.
Story pitch: Caregiving takes a significant toll on the nearly half million Canadians caring for a family member or friend with dementia. While research and innovation are essential for effective implementation of the Dementia Strategy for Canada, so too is getting the right balance between ‘tech’ and ‘touch’.
2.1 INToCARE, 2.2 MovIT-PLUS, 2.3 CARE-RATE, 2.4 ATforCC, AWCRP-2020-17 University of Alberta, Université de Montréal, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | KTEE - Knowledge Mobilization | 2019-09-16 | | | IJCC Editors Choice ArticleThe article we wrote, 'Life course trajectories and family care', has been selected as one of the International Journal of Care and Caring's new Editors’ Choice articles, and is featured on their website. https://policy.bristoluniversitypress.co.uk/journals/international-journal-of-care-and-caring/editors-choice 2.4 ATforCC University of Alberta | Scientific Excellence - Leadership | 2019-09-05 | | | International Journal of Care and Caring top 5 most read articles in 2019Our article was among the top five most read in the 2019 volume of International Journal of Care and Caring
Life course trajectories of family care [Open Access]
Authors: Norah Keating, Jacquie Eales, Laura Funk, Janet Fast and Joohong Min
https://doi.org/10.1332/239788219X154730793193092.4 ATforCC University of Alberta | Scientific Excellence - Leadership | 2020-02-04 | | | Young Caregivers (age 15-19) in Canada2-page infographic written by Jamie MacDonald, Jacquie Eales and Janet Fast, in consultation with community and government partners including members of youngcaregivers.ca, based on analyses of Statistics Canada’s 2012 General Social Survey on Caregiving and Care Receiving. Funding provided by Roger S. Smith Research Award and AGE-WELL NCE.
The infographic was released on October 1 in recognition of International Day of the Older Person. https://rapp.ualberta.ca/wp-content/uploads/sites/49/2019/09/2019-10-01-Young-Caregivers-in-Canada-infographic.pdf
2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2019-10-01 | | | Caregiving can last for decades, new research showsUnderstanding different lifetime patterns of caregiving can inform supportive policies to help people cope, say UofA researchers.
The article was intended to promote a new study published in Aging and Society.2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2020-09-14 | | | Making caregivers' contributions visible, valued and sustainableJanet Fast and Jacquie Eales were invited to present to the Alberta Caregivers Focused Coalition recent findings from the 2018 General Social Survey on Caregiving. The presentation highlighted key messages from two infographics co-created with Caregivers Alberta. AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-01-18 | | | "Something's gotta give": Juggling care work and paid work in mid-lifeKym Schreiner from Alberta Seniors and Housing invited us to host a roundtable discussion for Healthy Aging CORE (Collaborative Online Resources & Education) network. CORE Caregivers connects community-based senior serving professionals, volunteers, and allied partners from all across Alberta who encounter caregivers in their work with resources and support in addition to education and collaboration opportunities. The focus of the roundtable discussion was planned with Kym and other community partners from Caregivers Alberta, Carya Calgary and Dementia Network Calgary.
ABSTRACT: Research shows that mid-life caregivers (age 50+) who provide care to family or friends face challenges remaining in or returning to the labour force. What is the research revealing, what kinds of challenges arise for those juggling care work and paid work, and what kinds of resources need to be available to support them? The roundtable discussion featured: Wendy Moyle (employed caregiver and Board member of Caregivers Alberta); Kenya Kondo (Co-founder of MatchWork, industry partner), Janet Fast (AW researcher), Jacquie Eales (KM specialist) and moderated by Angus Mcdonell (Caregivers Alberta, Stakeholder Relations).
Participants commented that the discussion was thought-provoking and enlightening! Government partners hope to forward a number of our ideas within their policy world.
A recording of the roundtable discussion is available here: https://corealberta.ca/resources/recording-somethings-gotta-give-juggling-care-work-and-paid-work-mid-life-event
MyMatchWork.com promoted the recording across their network on April 7, 2022.AWCRP-2020-16 Government of Alberta, University of Alberta, Other, Caregivers Alberta | KTEE - Knowledge Mobilization | 2022-02-22 | | | Family Day imagery neglects family caregivers' care work; it needs to be valuedFamily Day often evokes images of families enjoying the outdoors together, playing board games or sharing a meal. But these images neglect the hidden care that nearly eight million caregivers across Canada provide. The article highlights new research based on analysis of the 2018 General Social Survey that determined the economic value of caregiving in Canada ($97.1 billion to replace families' care work), the magnitude of caregivers' contributions to Canadian society, and the key components of the care economy.AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-02-20 | | | RAPP Infographic: Value of Family Caregiving in CanadaNathan Battams from Vanier Institute of the Family wrote a blog post with input from Jacquie Eales about our estimated economic value of caregiving in Canada. This blog post is on their website and was featured in the VIF regular newsletter distributed to their network.AWCRP-2020-16 University of Alberta | KTEE - Knowledge Mobilization | 2022-02-22 | | | We Are All CaregiversA video that was created for National Carers Day 2018 created by caregivers for caregivers.http://www.carerscanada.ca/awareness-national-carers-day-2018/2.4 ATforCC, DATcares Independent, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, University of Waterloo | Product | 2018-04-03 | | | Find Your Ron A video created for National Carers Day 2018 - April 3rd - created by caregivers for caregivers. http://www.carerscanada.ca/awareness-national-carers-day-2018/2.4 ATforCC, DATcares Independent, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, University of Waterloo | Product | 2018-04-03 | | | Client-centred, community-based care for frail seniorsCompared with nursing home care, community care, which is often viewed in Canada as care at home, is assumed to be best for older adults with chronic disease or disabilities since it is seen as client-focused and less costly. As the number of frail seniors living in the community increases, governments in Canada seek to provide alternate models of nursing home care. As part of a larger initiative meant to increase the scope of community programmes, a demonstration project was conducted in western Canada to evaluate the implementation of client-centred, community-based residential care with individuals requiring nursing-home-level care. The present authors explore two main implementation challenges: whether care that is responsive to individual preferences can be provided to people who cannot assume active decision-making roles; and whether care can be centred in the community if people are living in residential care settings rather than in their own homes. Focus groups were conducted with two key stakeholder groups with varying informal (family members) and formal (programme staff) relationships with residents living in three new programmes. From content analysis, the programmes appeared successful in conveying the importance of recognising residents as individuals and of keeping them connected to the community, but fell short of implementation expectations. Three themes illustrate the challenges: (1) engaging with others in a care partnership; (2) responding to residents' preferences and care needs with limited resources; and (3) maintaining residents' connections with the community. To improve the feasibility of these programmes, some changes could be pursued within existing financial resources. However moderating the funding to bring it somewhat closer to nursing home levels could support the sustainability of community-situated programmes for frail seniors.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2003-01-01 | | | Seeking resilience: the care capacity goals of family carers and the role of technology in achieving themAbstract
Background
As global populations age, governments have come to rely heavily on family carers (FCs) to care
for older adults and reduce the demands made of formal health and social care systems. Under
increasing pressure, FCs’ resilience and the sustainability of their unpaid care work have become
pressing issues. Using qualitative data, this paper explores FCs’ care-related work goals, and
describes how those goals do, or do not, link to technology and the idea of resilience.
Methods
We employed a sequential mixed-method approach using focus groups followed by an online
survey about FCs’ goals. We held 10 focus groups and recruited 25 FCs through a mix of
convenience and snowball sampling strategies. Carer organizations helped recruit 599 FCs from
across Canada to complete an online survey. Participants’ responses to an open-ended question
in the survey were included in our qualitative analysis. An inductive approach was employed
using qualitative thematic content analysis methods to examine and interpret the resulting data.
We used NVIVO 12 software for data analysis.
Results
We identified two care quality improvement goals of FCs providing care to older adults:
enhancing and safeguarding their caregiving capacity. To enhance their capacity to care, FCs
sought: 1) foreknowledge about their care recipients’ changing condition, and 2) improved
navigation of existing support systems. To safeguard their own wellbeing, and so to preserve
their capacity to care, FCs sought to develop coping strategies as well as opportunities for
mentorship and socialization.
Conclusions
We conclude that a paradigm shift is needed to reframe caregiving from a current deficit frame
focused on failures and limitations (burden of care) towards a more empowering frame
(sustainability and resiliency). The fact that FCs are seeking strategies to enhance and safeguard
their capacities to provide care means they are approaching their unpaid care work from the
perspective of resilience. Their goals and technology suggestions imply a shift from
understanding care as a source of ‘burden’ towards a more ‘resilient’ and ‘sustainable’ model of
caregiving. Our case study findings show that technology can assist in fostering this resiliency
but that it may well be limited to the role of an intermediary that connects FCs to information,
supports and peers.2.4 ATforCC, 2.9-CAT, 2.11-SIP A1 University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta | Scientific Excellence - Advancing Knowledge | 2019-10-31 | | | Trajectories of family care over the life course: evidence from CanadaAbstract: In the midst of a ‘care crisis’, attention has turned again to families who are viewed both as untapped care resources and as disappearing ones. Within this apparent policy/demographic impasse, we test empirically theorised trajectories of family care, creating evidence of diverse patterns of care across the life course. The study sample, drawn from a Statistics Canadian national survey of family care, comprised all Canadians aged 65 and older who had ever provided care (N=3299). Latent profile analysis
yielded five distinct care trajectories: Compressed Generational; Broad Generational; Intensive Parent Care; Career Care; and Serial Care. They differed in age of first care experience, number of care episodes, total years of care, and amount of overlap among episodes. Trajectories generally corresponded to previously hypothesised patterns but with additional characteristics that added to our understanding of diversity in life course patterns of care. The five trajectories identified provide the basis for further understanding how time and events unfold in various ways across life courses of care. A gap remains in understanding how relationships with family and social network members evolve in the context of care. A challenge is presented to policy makers to temper a ‘families by stealth’ policy approach with one that supports family carers who are integral to health and social care systems.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-01-08 | | | Research recap: Beyond "snapshots" to "lifetimes" of family careCo-created in partnership with Nathan Battams at the Vanier Institute of the Family, the research recap highlights the five empirically-derived care trajectories across the life course based on our analysis of the 2012 General Social Survey.
The article is accessible on the Vanier Institute of the Family web site: https://vanierinstitute.ca/resources/research-recaps/
As of February 25, 2020, the article has been accessed 460 times, 267 page views of blog version, and 193 PDF downloads. On Twitter it reached 1,122 and on Facebook it had 27 engagements (likes and retweets).2.4 ATforCC University of Alberta | KTEE - Knowledge Mobilization | 2019-06-25 | | | The care capacity goals of family carers and the role of technology in achieving themAs global populations age, governments have come to rely heavily on family carers (FCs) to care for older adults and reduce the demands made of formal health and social care systems. Under increasing pressure, sustainability of FC’s unpaid care work has become a pressing issue. Using qualitative data, this paper explores FCs’ care-related work goals, and describes how those goals do, or do not, link to technology.
The article is open access.2.4 ATforCC, 2.9-CAT University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-02-27 | | | ‘Innova’ digital application and database for designers to innovate for carersStrickfaden, M., Fiorentino, C., Martin, M., Eales, J. & Fast, J. (2020). ‘Innova’ digital application and database for designers to innovate for carers. In P. Langdon, J. Lazar, A. Heylighen & H. Dong (eds), Designing for Inclusion: Inclusive Design; Looking towards the future (pp 35-46). Geneva, Switzerland: Springer Nature.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-05-01 | | | A taxonomy of the economic costs of family care to adultsA systematic scoping review was conducted to evaluate the current state of knowledge of the economic costs incurred by family caregivers to adults with long-term health problems or disabilities. A narrative synthesis of 126 articles published since 1999 was undertaken to develop a taxonomy of the economic costs experienced by these caregivers. Three broad domains of sources of economic costs for caregivers were identified: employment consequences, out-of-pocket expenses and caregiving labor, with sub-categories within each domain. Economic outcomes were identified for each cost domain. Generation of new knowledge across the three cost domains has been uneven, with disproportionate interest in employment consequences. There are knowledge and methods gaps around all of the domains of care arising from failure to measure, or measure consistently, the costs; failure to account for contexts within which care is delivered; and lack of consistency in specifying care thresholds influencing labor force exit and employment consequences. An expanded research agenda on costs of family care should address cumulative and cross-domain care costs. Links between economic and social and health costs are fertile ground for a comprehensive understanding of the full costs of family care.2.4 ATforCC University of Alberta | Scientific Excellence - Advancing Knowledge | 2014-10-15 | | | Precedent-based research for Assistive Technologies (AT): Introducing Innova, a digital application and database to analyze existing products and services for older adultsThis article reports on the interdisciplinary design and development of a digital application and database that serves to collect and analyze assistive technologies (AT) currently available to family/friend caregivers who provide unpaid care to older adults in Canada. AT devices/services currently on the market serve as precedents in the sense that they can inform the design of new AT devices/services that suit the needs of caregivers. As such, the devices/services become a kind of 'materialized design knowledge' that is a significant kit of information that acts as sources of inspiration for designers. The general aim of this project is to pool and examine information about AT precedents that support caregivers and care recipients in a variety of domains of daily life - health, daily living, safety, entertainment and mobility so that designers, innovators, researchers and a variety of other stakeholders can improve existing AT devices/services and create new AT devices/services that suit caregivers' needs. The tool and database reported in this paper consists of a smart phone/tablet application and a web site which contains a user-centred survey, application interface, and feedback features. The details of the surveys and feedback features provides in-depth information including material and immaterial AT device and service attributes that will inform future innovation and design of AT devices/services for caregivers. This presentation will provide an in-depth account of the rationale, design/development, and design implementation of the digital tool and database of AT devices/services for older adults.2.4 ATforCC University of Alberta | Scientific Excellence - Leadership | 2017-03-02 | | | The positive effects of caregiving for family caregivers of older adults: A scoping reviewThe negative social, psychological, physical health, and employment-related effects of caregiving on caregivers are well documented; however, positive effects have received less attention. A scoping review was conducted to synthesize and thematically analyze the results of 24 studies published between 2000 and 2018 regarding positive effects of family caregiving of older adults. Our analysis revealed that positive effects of caregiving are embedded in complex, interconnected relationships. Identified themes were: 1) In relationship with one’s self (the caregiver) described positive effects such as personal growth; 2) In relationship to the care-recipient described positive effects such as a deepened dyadic relationship, and 3) Relationships with others described positive effects such as those derived from new care-related relationships. Seeing the positive effects of caregiving as relational and in relationship may shape environmental factors, as defined by the International Classification of Functioning, Disability and Health, such as the development of assistive devices and social policy.2.1 INToCARE, 2.2 MovIT-PLUS, 2.4 ATforCC Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal, University of British Columbia, University of Alberta, Université Laval | Scientific Excellence - Advancing Knowledge | 2020-02-04 | | | WP2 Promotional VideosSPECIAL WP2 PROJECT -
Alex Pysklywec is an experienced research assistant who worked with WP2 Core Project Leads as well as some of the short term project researchers to produce promotional videos representing the ongoing work of WP2. A total of 7 videos were made highlighting both the core projects, the nature of family caregiving, and 2 short term projects.
The work was completed by December 2017.
Louise Demers, one of the WP2 leads, oversaw and supported the project.
2.1 INToCARE, 2.2 MovIT-PLUS, 2.3 CARE-RATE, 2.4 ATforCC, 2.5-S1 PCOACH, 2.6-CAT1 CWiC Université de Montréal, University of British Columbia, Université Laval, Research Institute of the McGill University Health Centre, Toronto Rehab Institute, University Health Network, University of Waterloo, University of Alberta | KTEE - Knowledge Mobilization | 2017-12-01 | Louise Demers, Alex Pysklywec, Ben Mortenson, Francois Routhier, Claudine Auger, Sara Ahmed, Jan Polgar, Frank Rudzicz, Jennifer Boger, Janet Fast, Jacquie Eales, Tilak Dutta, Andrew Magnaye |
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