Profile
Ben Mortenson is an assistant professor in the Department of Occupational Science and Occupational Therapy at the University of British Columbia. His research focuses on four overlapping areas: assistive technology, social participation, caregiving and outcome measurement. He is a principal investigator at the GF Strong Rehabilitation Research Program and International Collaboration on Repair Discoveries. For AGE-WELL 2.1 Ben supervises: Marli Siebrits, and Randa Dalle, both research assistants; and research coordinator, Mary Ellen Johnson. He is also negotiating with an international student to join the project as a PhD student for September. Ben meets with his HQP on a weekly basis and encourages them to participate in AGE-WELL and other related educational responsibilities. Outputs
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| The Biomechanics Of Using A SmartDrive For Wheelchair Propulsion2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-10-01 | | | A scoping review of mobility scooter-related empirical studies2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-06-01 | | | Parents’ Experiences with Plagiocephaly and Treatment Decisions2.1 INToCARE, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | | | Exploratory Validation of a Multidimensional Power Mobility Outcomes Toolkit2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | | | The Efficacy of Scooter Training for Adults: A Pilot Study.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | | | Intelligent power wheelchairs for residents in long-term care facilities: Potential users' experiences and perceptions.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-06-01 | | | Challenges and strategies to improve recruitment and retention of the frail elderly in research studies: A systematic review2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2013-06-01 | | | Mobility choices among community-dwelling, older adult, power wheelchair users2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2013-05-01 | | | Introducing a tool for measuring the impact of power mobility use by older adults on their family caregivers2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-10-01 | | | Powered mobility with collision avoidance technology for older adults: Perspectives of users, prescribers and caregivers and the implications for design2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-10-01 | | | The impact of older adults' use of power wheelchairs on their informal caregivers2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-05-01 | | | Measuring the effectiveness of assistive technology in community and home environments: Capturing the perspectives of users and caregivers2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of Ottawa, Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2010-05-01 | | | Wheelchair mobility in older adults. Are we ready to roll?2.2 MovIT-PLUS, 2.4 ATforCC University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2010-05-01 | | | Wheeled mobility in older adults: Wheeling into the future2.2 MovIT-PLUS, 2.4 ATforCC University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2009-06-01 | | | Justlike driving a car: Perceptions of power mobility safety.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2003-10-01 | | | The development of client-centred guidelines for power mobility safety2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2002-03-01 | Ben Mortenson, Boily J, Crawford E, Desharnais G, Elgood B, Odell L, & Miller B | | Development and preliminary evaluation of the caregiver assistive technology outcome measure.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | | | Taking control with tilt-in-space wheelchairs: An exploratory study of their use in residential care2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-03-01 | | | Measurement properties of the late life disability index among individuals who use power wheelchairs as their primary means of mobility.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-05-01 | | | Challenges and strategies pertaining to recruitment and retention of frail elderly in research studies: a systematic review.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-03-01 | Véronique Provencher, Ben Mortenson, Tanguay-Garneau L, Bélanger K, Dagenais M | | Effects of an assistive technology intervention on older adults with disabilities and their informal caregivers: an exploratory randomized controlled trial. (I received a CIHR-Institue of Ageing award for best post-doctoral poster for this research).2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2013-04-01 | | | How assistive technology use by individuals with disabilities impacts their caregivers: a systematic review of the research evidence.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2012-11-01 | | | Commentary on "ICF from an occupational therapy perspective in adult care: an integrative literature review."2.2 MovIT-PLUS, 2.4 ATforCC University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2012-09-01 | | | Measurement properties of the wheelchair outcome measure in individuals with spinal cord injury.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2011-09-01 | | | Satisfaction with participation using a manual wheelchair among individuals with spinal cord injury.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2010-09-01 | | | Measuring wheelchairintervention outcomes: Development of the wheelchair outcome measure2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2007-09-01 | | | Pressure ulcers following spinal cord injury2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2008-01-01 | Miller WC, Aubut JL, Connolly SJ, Curt A, Elliott S, Hsieh JTC, Ben Mortenson, Noonan V, Noreau L, Orenczuk SG, Sakakibara BM, Sawatzky B, Steeves J, Wilkinson S, & Wolfe DL | | Outcome measures.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2008-01-01 | Miller WC, Aubut JL, Connolly SJ, Curt A, Elliott S, Hsieh JTC, Ben Mortenson, Noonan V, Noreau L, Orenczuk SG, Sakakibara BM, Sawatzky B, Steeves J, Wilkinson S, & Wolfe DL | | Web-Based Systematic Telemonitoring and Teletraining of User-CaregiverDyads After Provision of Assistive Technology : Conceptual Framework2.2 MovIT-PLUS Université de Montréal, Research Institute of the McGill University Health Centre, Université de Sherbrooke, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-10-24 | | | Exploratory Validation of a Multidimensional Power Mobility Outcomes Toolkit2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal, Université Laval | Scientific Excellence - Advancing Knowledge | 2015-09-01 | | | Provision of assistive technology: Partnering with caregivers for better outcomes2.1 INToCARE, 2.2 MovIT-PLUS, 2.4 ATforCC University of Montreal, University of British Columbia, University of Ottawa, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2014-10-01 | | | Mixed Effects of Older Adults’Use of Power Wheelchairs on their Informal Caregivers2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2013-04-01 | | | AT-SELECT: Understanding the issues around adoption of e-decision support for self-selection of assistive technology by elders8.1 AT-SELECT, 2.4 ATforCC Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-10-23 | | | Social, ethical and cultural issues around the adaptation and the adoption of an e-decision support system for self-selection of assistive technologies by elders: A study protocol8.1 AT-SELECT, 2.4 ATforCC Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-10-25 | | | Wheelchair-specific burden and overall burden of family caregivers of community-dwelling wheelchair users with and without cognitive/communicative impairment2.2 MovIT-PLUS Université de Montréal, Research Institute of the McGill University Health Centre, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-10-25 | | | Portail télésanté pour les proches aidants d’usagers d’aides techniques : Protocole2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Research Institute of the McGill University Health Centre, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-09-30 | | | Technological and ethical acceptability of an online decision support application for the self-selection of assistive technologies by older Canadians: A research protocol8.1 AT-SELECT, 2.4 ATforCC Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2016-05-13 | | | Interface design for a shared control, tele-operated power wheelchair. 2.1 INToCARE, 2.2 MovIT-PLUS, 3.2 CoPILOT, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Leadership | 2014-08-20 | | | Long-Term Care Facility Residents’ Initial Experiences and Perceptions of Intelligent Power Wheelchairs2.1 INToCARE, 2.2 MovIT-PLUS, 3.2 CoPILOT, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia | Scientific Excellence - Leadership | 2016-03-01 | | | Canwheel: A Canadian Research Team Dedicated to Improving the Power Mobility Opportunities of Older Adults2.1 INToCARE University of British Columbia, Université de Montréal | Scientific Excellence - Leadership | 2015-02-25 | | | CanWheel: Improving Power Wheeled Mobility for Older Canadians2.1 INToCARE, 2.2 MovIT-PLUS, 3.2 CoPILOT, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal, Université Laval | Scientific Excellence - Leadership | 2016-03-01 | | | Smart Wheelchairs in Assessment and Training: A Consensus Workshop2.1 INToCARE, 2.2 MovIT-PLUS, 3.2 CoPILOT, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, McGill University, Université Laval | Scientific Excellence - Leadership | 2016-03-01 | "P Viswanathan ", "RH Wang ", "A Sutcliffe ", "L Kenyon ", "Foley G ", "M Adams ", "P Archambault ", "B Black ", "J Blain ", "M Bresler ", "S Cotarla ", "Y Demiris ", "Ed Giesbrecht ", "P Gardney ", "P Gryfe ", "K Hall ", "C Mandel ", "K McGilton ", "F Michaud ", Ian Mitchell, Ben Mortenson, "L Nilsson ", Joelle Pineau, Emma Smith, "E Zambalde ", "D Zondervan ", Francois Routhier, "T Carlson ", "L Kirby ", "R Simpson ", Bill Miller, "A Mihailidis " | | Long-Term Care Facility Residents’ Initial Experiences and Perceptions of Intelligent Power Wheelchairs2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC Université de Montréal, University of British Columbia, University of Toronto | Scientific Excellence - Advancing Knowledge | 2016-03-01 | | | AGE-WELL – WP 2.1 INToCARE Poster presented by Michelle Plante at the 2015 Annual Conference and Annual General Meeting.2.1 INToCARE, 2.4 ATforCC University of British Columbia, Université Laval, Université de Montréal, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | Scientific Excellence - Advancing Knowledge | 2015-10-23 | | | Development of the Caregiver Assistive Technology Outcome Measure.2.1 INToCARE, 2.2 MovIT-PLUS Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-11-01 | | | A Novel Assistive Technology Intervention for Older Adults with Disabilities and their Informal Caregivers : Results from a preliminary Randomized Control Trial (Prix de l’Institut du vieillissement la meilleure affiche, catégorie des postdoctorants)2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-11-01 | | | Impacts des aides techniques auprès des usagers et de leurs proches-aidants2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-11-01 | | | Adaptation transculturelle d'un outil en ligne pour la sélection d'aides techniques par les personnes âgées: protocole du projet AT-SELECT.Chenel, V., Guay, M., Jutai, J., Mortenson, W.B., Gore, P., Johnson, G., Auger, C. (6 mai 2016). Adaptation transculturelle d'un outil en ligne pour la sélection d'aides techniques par les personnes âgées: protocole du projet AT-SELECT. 12e journée scientifique du Centre de recherche sur le vieillissement et 26e Gérontoclub. Sherbrooke, Québec, Canada. (Présentation par affiche).2.1 INToCARE, 8.1 AT-SELECT Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2016-05-06 | | | Transférabilité d’un outil pour la sélection d'aides technologiques par les aînés: protocole AT-SELECT.Chenel, V., Guay, M., Jutai, J., Mortenson, W.B., Gore, P., Leibing, A, Johnson, G., Auger, C. (30 septembre-1er octobre 2015). Transférabilité d’un outil pour la sélection d'aides technologiques par les aînés: protocole AT-SELECT. 13ième édition des Journées de la recherche du Réseau québécois de recherche sur le vieillissement. Montréal, Québec, Canada. (Présentation par affiche).8.1 AT-SELECT Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-09-30 | | | A logic model for the conception and development of a web-based intervention for remote monitoring and teletraining of family caregivers. Moreno, JA., Auger, C., Mortenson, WB., Guay, M., Ahmed, S. (2016). A logic model for the conception and development of a web-based intervention for remote monitoring and teletraining of family caregivers. Aging, International Journal of Psychology, 51 (1), 48.2.2 MovIT-PLUS Université de Montréal, University of British Columbia, Université de Sherbrooke, Research Institute of the McGill University Health Centre | Scientific Excellence - Advancing Knowledge | 2016-07-25 | | | Effect of assistive technology interventions on users and their caregivers. 45th Annual Scientific and Educational Meeting of the Canadian Association on GerontologyMortenson, W. B., Jutai, J., Fuhrer, M., Bilkey, J., Plante, M., Deruyter, F., Demers, L. (October 20-22, 2016). Effect of assistive technology interventions on users and their caregivers. 45th Annual Scientific and Educational Meeting of the Canadian Association on Gerontology. Montreal, Québec, Canada. (poster presentation)2.1 INToCARE, 8.1 AT-SELECT University of British Columbia, University of Ottawa, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2016-10-21 | | | Family Caregivers' Remote Support Needs after Provision of Assistive Technology: Preliminary results. 45th Annual Scientific and Educational Meeting of the Canadian Association on GerontologyGelinas-Bronsard, D., Ahmed, S., Mortenson, W. B., Guay, C., Moreno, A., Guay, M., Auger, C. (October 20-22, 2016). Family Caregivers' Remote Support Needs after Provision of Assistive Technology: Preliminary results. 45th Annual Scientific and Educational Meeting of the Canadian Association on Gerontology. Montreal, Québec, Canada. (Poster Presentation)2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT Research Institute of the McGill University Health Centre, University of British Columbia, Université de Montréal, Université de Sherbrooke | Scientific Excellence - Advancing Knowledge | 2016-10-21 | | | WP2 Promotional VideosSPECIAL WP2 PROJECT -
Alex Pysklywec is an experienced research assistant who worked with WP2 Core Project Leads as well as some of the short term project researchers to produce promotional videos representing the ongoing work of WP2. A total of 7 videos were made highlighting both the core projects, the nature of family caregiving, and 2 short term projects.
The work was completed by December 2017.
Louise Demers, one of the WP2 leads, oversaw and supported the project.
2.1 INToCARE, 2.2 MovIT-PLUS, 2.3 CARE-RATE, 2.4 ATforCC, 2.5-S1 PCOACH, 2.6-CAT1 CWiC Université de Montréal, University of British Columbia, Université Laval, Research Institute of the McGill University Health Centre, Toronto Rehab Institute, University Health Network, University of Waterloo, University of Alberta, Toronto Rehab Institute/University Health Network | KTEE - Knowledge Mobilization | 2017-12-01 | Louise Demers, Alex Pysklywec, Ben Mortenson, Francois Routhier, Claudine Auger, Sara Ahmed, Jan Polgar, Frank Rudzicz, Jennifer Boger, Janet Fast, Jacquie Eales, Tilak Dutta, Andrew Magnaye | | Non-Digital Game Playing by Older AdultsMortenson, B., Sixsmith, A., & Kaufman, D. (2017). Non-digital game playing by older adults. Canadian Journal on Aging, 36(3), 342-350. doi:10.1017/S07149808170001624.2 CONNECT-PLAY University of British Columbia, KITE Research Institute at University Health Network, Simon Fraser University | Scientific Excellence - Advancing Knowledge | 2017-06-01 | | | “I am a busy independent woman who has sense of humor, caring about others”: Older adults’ self-representations in online dating profilesWada, M., Hurd Clarke, L., & Mortenson, W. B. (2017). “I am a busy independent woman who has sense of humor, caring about others”: Older adults’ self-representations in online dating profiles. Ageing and Society, Advance online publication, 1-26. doi.org/10.1017/S0144686X170013252.1 INToCARE, 8.1 AT-SELECT University of British Columbia | Scientific Excellence - Advancing Knowledge | 2017-12-04 | | | “I am very active and healthy and…enjoy the simple things in life”: Older adults’ self-representations in online dating profilesCanadian Association on Gerontology Conference. October 20-22, Montreal, QC. 2.1 INToCARE University of British Columbia | Scientific Excellence - Advancing Knowledge | 2016-10-20 | | | Successful aging meets romance: Examination of older adults’ self-representation in online dating profiles125. Wada, M., Mortenson, W. B., & Hurd Clarke, L. (2016). Successful aging meets romance: Examination of older adults’ self-representation in online dating profiles. Poster presentation at the 45th Annual Scientific and Educational Meeting of the Canadian Association on Gerontology. October 20-22, Montreal, QC.2.1 INToCARE, 8.1 AT-SELECT University of British Columbia | Scientific Excellence - Advancing Knowledge | 2016-10-20 | | | Case Study workshop1.3 OA-INVOLVE Dalhousie University, University of Dundee, University of British Columbia, University of Waterloo, University of Alberta | KTEE - Knowledge Mobilization | 2017-08-29 | | | Older adults’ online dating profiles and successful agingWada, M., Mortenson, W. B., & Hurd Clarke, L. (2016). Older adults’ online dating profiles and successful aging. Canadian Journal on Aging / La Revue canadienne du vieillissement, 35, 479-490. doi: 10.1017/S0714980816000507Other University of British Columbia | Scientific Excellence - Advancing Knowledge | 2016-10-24 | | | Smart Wheelchairs in Assessment and Training (SWAT): State of the FieldThe Smart Wheelchairs in Assessment and Training (SWAT) initiative was conducted with an international and interdisciplinary group of researchers, clinicians, and members of industry with experience in powered wheelchair intervention.
This state of the field report summarizes the initiative results, and suggests next steps in the research,
development, and commercialization of smart wheelchair technologies for assessment and training of powered mobility use.
3.2 CoPILOT, 3.4-SIP A1 NAVIGATE University of Toronto, University of British Columbia, KITE Research Institute at University Health Network, McGill University, Université de Sherbrooke | Scientific Excellence - Advancing Knowledge | 2018-02-01 | Pooja Viswanathan, Rosalie Wang, "Andrew Suttcliffe ", "Lisa Kenyon ", Geneviève Foley, Bill Miller, "Julianne Bell ", "Lee Kirby ", "Rich Simpson ", Alex Mihailidis, "Marlene Adams ", Philippe Archambault, "Ross Black ", "Julie Blain ", "Mark Bresler ", "Simona Cotarla ", "Yiannis Demiris ", Ed Giesbrecht, "Paula Gardner ", "Pearl Gryfe ", "Karen Hall ", "Christian Mandel ", "Kathy McGilton ", Francois Michaud, Ian Mitchell, Ben Mortenson, "Lisbeth Nilsson ", Joelle Pineau, Emma Smith, "Ellen Zambalde ", "Danny Zondervan ", 2191, "Tom Carlson " | | ''Co-construction of an Internet-based Intervention for Older Assistive Technology Users and their Family Caregivers: Stakeholders’ Perceptions"Purpose: Providing care to older adults using assistive technology can be challenging for family caregivers. To inform the development of an Internet-based intervention, this study aimed to identify older assistive technology users and family caregivers’ needs related to assistive technology procurement, and to explore how to offer remote support through an Internet-based intervention.
Methods: Based on an iterative user-centered design approach, 30 semi-structured interviews were conducted with stakeholders about their experiences with assistive technology procurement/attribution and their perceptions of a proposed intervention. A modified content analysis approach was used, with a mix of emerging and a priori concepts.
Results: Participants view assistive technology procurement as an ongoing cyclical process, with potential unmet needs at key moments before and after assistive technology procurement. Assistive technology user-family caregiver dyads needs focus on assistive technology information, access, assistive technology-person-context match, training and support. While participants felt there were benefits to the proposed intervention they also identified potential implementation barriers.
Conclusion: Assistive technology Internet-based interventions dedicated to family caregivers should ensure systematic and tailored follow-up while integrating some form of human support. This study guides the prototype design of the proposed intervention towards a graded support approach, empowering assistive technology users and family caregivers to resolve assistive technology-related challenges.2.2 MovIT-PLUS University of British Columbia, Research Institute of the McGill University Health Centre, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-10-14 | | | From ‘Needs’ to ‘Goals’: Evolving the User Centered Design process for technology supporting family caregiversIn this paper we describe adjustments to a particular software design process aimed at developing technology to support family caregivers. Our case study focuses on the co-design of a smartphone application to assist caregivers in managing and coping with the work of caring for older adults. We use the specifics of this case study to shed light on the technology development benefits of framing user-centered design (UCD) through caregivers’ goals rather than their needs. We show how this re-framing of the co-design process away from a deficit, or needs-based approach and towards a strength, or goal-oriented approach is central to developing technologies that caregivers are more likely to commit time and resources to learning and integrating into their lives.2.1 INToCARE, 2.4 ATforCC, 2.9-CAT, 2.11-SIP A1 University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2018-07-31 | | | Caregivers’ experiences with the selection and use of assistive technologyQualitative data from a mixed-methods clinical trial are used to examine caregivers’ experiences with the selection and use of assistive technology to facilitate care recipients’ independence. Through a thematic analysis of interviews from 27 caregivers, three broad themes were identified. “A partial peace of mind” described the generally positive psychological impacts from assistive technology, mainly reduced stress and a shift in caregiving labour from physical tasks to a monitoring role. “Working together” explored the caregivers’ experiences of receiving assistive technology and the sense of collaboration felt by caregivers during the intervention process. Finally, “Overcoming barriers“ addressed two impediments to accessing assistive technology: lack of funding and appointment wait times for service providers. The findings suggest that assistive technology provision by prescribers plays a beneficial role in the lives of caregivers, but access to such benefits can be hampered by contextual constraints.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, University of Ottawa, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-09-16 | | | Co-construction of an Internet-based intervention for older assistive technology users and their family caregivers: Needs identification phasePurpose: Providing care to older adults using assistive technology can be challenging for family caregivers. To inform the development of an Internet-based intervention, this study aimed to identify older assistive technology users and family caregivers’ needs related to assistive technology procurement, and to explore how to offer remote support through an Internet-based intervention.
Methods: Based on an iterative user-centered design approach, 30 semi-structured interviews were conducted with stakeholders about their experiences with assistive technology procurement/attribution and their perceptions of a proposed intervention. A modified content analysis approach was used, with a mix of emerging and a priori concepts.
Results: Participants view assistive technology procurement as an ongoing cyclical process, with potential unmet needs at key moments before and after assistive technology procurement. Assistive technology user-family caregiver dyads needs focus on assistive technology information, access, assistive technology-person-context match, training and support. While participants felt there were benefits to the proposed intervention they also identified potential implementation barriers.
Conclusion: Assistive technology Internet-based interventions dedicated to family caregivers should ensure systematic and tailored follow-up while integrating some form of human support. This study guides the prototype design of the proposed intervention towards a graded support approach, empowering assistive technology users and family caregivers to resolve assistive technology-related challenges.2.1 INToCARE, 8.1 AT-SELECT University of British Columbia, Research Institute of the McGill University Health Centre, Université de Sherbrooke, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-03-01 | | | “Setting the sails”: Stakeholders perceptions of an adapted sailing programThe purpose of this study was to explore the experiences of current and former sailors, staff and volunteers who were involved in an adaptive recreational sailing program and identify the factors that impact their engagement. Using an ethnographic approach, participant observations (n = 20) and qualitative interviews (n = 18) were conducted with sailors, staff and volunteers. We analyzed the data thematically and identified two main themes. 1) “Anchors away: reasons for setting sail,” described the benefits of adaptive sailing including learning opportunities, leaving disability onshore, challenging stigma, building a community and engaging with nature. 2) “Running ashore: challenges with program delivery and logistics,” acknowledged the various issues encountered, including issues around accessibility, equipment, scheduling, safety management, and volunteers/volunteering. The findings emphasize how adaptive sailing offers a multidimensional experience and could reduce prejudices against people with disabilities. Challenges regarding accessibility of facilities and transports as well as volunteers were identified.2.1 INToCARE, 8.1 AT-SELECT University of British Columbia | Scientific Excellence - Advancing Knowledge | 2018-09-16 | Delphine Labbé, "Hanna, C. ", "Bahen, M. ", "Borisoff, J.F. ", "Mattie, J.L. ", Ben Mortenson | | Towards sustainable family care: Using goals to re-frame the user-centred design of technologies to support carersTechnology has been identified as an important strategy in making caring sustainable. This article takes the design process for carer support technology as a lens on the divergent definitions that are in play when governments, technology developers and carers contemplate ‘sustainability’. We argue that a central impediment to finding a productive point of overlap among the three perspectives is a predominant focus on carers’ needs. We contrast this needs-based approach, and its focus on doing the tasks of care, with a goal-oriented approach focused on being in relationships. Reframing the conversation around goals is important to achieving truly sustainable caring.2.1 INToCARE, 2.4 ATforCC, 2.9-CAT University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2019-08-19 | | | Longitudinal Outcomes Among Family Caregiver's of Power Mobility UsersObjective
To examine the change over 1 year in the burden, wheelchair skills, social support, social participation, and mental health of family caregivers providing assistance to older adult powered wheelchair users.
Design
Longitudinal study.
Setting
Community.
Participants
Participants (N=35) included family caregivers (mean age ± SD=63.7±10.2y) who provided at least 2 hours of general care per week for a powered wheelchair user.
Intervention
Not applicable.
Main Outcome Measures
The Power Mobility Caregiver Assistive Technology Outcome Measure (frequency of care and subjective burden), the Wheelchair Skills Test Questionnaire for caregivers (wheelchair skills), the Interpersonal Support Evaluation List-6 (social support), the Late-Life Function and Disability Instrument (social participation), the Hospital Anxiety and Depression Scale (mental health). Measures were taken at baseline, 1, 3, 6, and 12 months. Descriptive statistics were calculated, and a linear mixed model was used to assess changes over time in the outcomes.
Results
The results showed that the caregivers helped on average with 3 powered wheelchair-related activities and 10 other caregiving activities. They also experienced moderate subjective burden and social participation and were within the normal range for depression and anxiety. Moreover, those outcomes remained stable over the 1-year study period. However, the wheelchair skills scores showed significant changes over time, as the scores improved during the first 6 months of the study.
Conclusion
Given that previous research indicated that subjective burden tends to decline over time among caregivers, the findings of stability in this study may reflect increasing needs among this population of caregivers, who may benefit from additional support and interventions. This would need further consideration.2.1 INToCARE, 2.2 MovIT-PLUS, 8.1 AT-SELECT, 2.4 ATforCC University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-10-26 | | | Positive experiences and resources of caregivers of powered wheelchair users: a qualitative inquiry2.1 INToCARE University of British Columbia, Université de Montréal, Université Laval | Scientific Excellence - Advancing Knowledge | 2019-04-23 | | | Enhancing the usability and safety of mobility scootersPolicy recommendations to enhance the usability and safety of mobility scooters. Prepared in completion of the APPTA Pep Talks Certification Program. 3.2 CoPILOT, 7.1 PRI-TECH University of British Columbia, McGill University | Scientific Excellence - Advancing Knowledge | 2019-07-10 | | | Être le proche aidant d’une personne âgée vivant avec des incapacités : Résultats préliminaires d’une étude qualitativeInvited short paper in a non peer-reviewed journal 2.1 INToCARE University of British Columbia, Université de Montréal, Simon Fraser University, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université Laval | Scientific Excellence - Advancing Knowledge | 2019-06-26 | | | The positive effects of caregiving for family caregivers of older adults: A scoping reviewThe negative social, psychological, physical health, and employment-related effects of caregiving on caregivers are well documented; however, positive effects have received less attention. A scoping review was conducted to synthesize and thematically analyze the results of 24 studies published between 2000 and 2018 regarding positive effects of family caregiving of older adults. Our analysis revealed that positive effects of caregiving are embedded in complex, interconnected relationships. Identified themes were: 1) In relationship with one’s self (the caregiver) described positive effects such as personal growth; 2) In relationship to the care-recipient described positive effects such as a deepened dyadic relationship, and 3) Relationships with others described positive effects such as those derived from new care-related relationships. Seeing the positive effects of caregiving as relational and in relationship may shape environmental factors, as defined by the International Classification of Functioning, Disability and Health, such as the development of assistive devices and social policy.2.1 INToCARE, 2.2 MovIT-PLUS, 2.4 ATforCC Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal, University of British Columbia, University of Alberta, Université Laval | Scientific Excellence - Advancing Knowledge | 2020-02-04 | | | Interviews with family caregivers of older adults: Their experiences of care and the integration of assistive technology in care2.1 INToCARE University of British Columbia, Université de Montréal, Simon Fraser University, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université Laval | Scientific Excellence - Advancing Knowledge | 2019-03-04 | |
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